The Fowler family is dedicated to sharing their experience and is actively raising money in the hopes that raising awareness may aid in the search for a solution.
In order to generate money and awareness for clinical studies, treatments, and a potential cure, the family is working alongside their daughter, Braelynne, to raise money for the Cure Sanfilippo Foundation.
The Fowler family strives to love a little bit more each day in spite of their daughter’s diagnosis.
Carrie Fowler told Good Morning America,
“She’s taught me so much, but definitely that we love a lot harder when we take for granted the little things in life.
” And despite all of the heartache we also experience, we strive every day to be truly joyful for her. We make an effort to feel pleased for her as she deserves it.
